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Portuguese validation of the Cambridge pulmonary hypertension outcome review (CAMPHOR) questionnaire

dc.contributor.authorReis, A.
dc.contributor.authorTwiss, J.
dc.contributor.authorVicente, M.
dc.contributor.authorGonçalves, F.
dc.contributor.authorCarvalho, L.
dc.contributor.authorMeireles, J.
dc.contributor.authorMelo, A.
dc.contributor.authorMcKenna, S.
dc.contributor.authorAlmeida, L.
dc.date.accessioned2017-07-06T13:18:15Z
dc.date.available2017-07-06T13:18:15Z
dc.date.issued2016-07-26
dc.description.abstractBACKGROUND: Patients with pulmonary arterial hypertension (PAH) and other forms of precapillary pulmonary hypertension (PH) have impaired quality of life (QoL). The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) is a PH-specific patient-reported outcome measure that assesses symptoms, activity limitations and QoL. It was originally developed in UK-English. The main objective of this study was to create an adaptation of the CAMPHOR suitable for a Portuguese-speaking population. METHODS: A multi-step approach was followed: bilingual and lay panel translation; cognitive debriefing interviews; and psychometric testing in repeated postal surveys (2 weeks apart) including assessment of internal consistency, reproducibility and validity. The Nottingham Health Profile (NHP) questionnaire was used as a comparator instrument to test convergent validity. RESULTS: The CAMPHOR was translated without difficulty by the two panels. Cognitive debriefing interviews showed the questionnaire was easily understood and considered relevant to patients' experience with their illness. Psychometric evaluation was performed with 50 PAH patients (47 ± 14 years, 37 women). Cronbach's alpha coefficients showed good internal consistency for the three CAMPHOR scales [Symptoms = 0.95; Activities = 0.93 and QoL = 0.94]. Test-retest coefficients showed that all scales had excellent reliability (Symptoms = 0.94; Activities = 0.89 and QoL = 0.93), indicating low levels of random measurement error. The CAMPHOR correlated as expected with the NHP. The magnitude of correlations followed a similar pattern to those in the original development study. The CAMPHOR also exhibited evidence of known group validity in its ability to distinguish between self-reported severity and general health groups. CONCLUSIONS: A valid and reliable version of the CAMPHOR questionnaire for the European Portuguese-speaking population was developed and is recommended for use.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationHealth Qual Life Outcomes. 2016 Jul 26;14(1):110pt_PT
dc.identifier.doi10.1186/s12955-016-0513-8pt_PT
dc.identifier.issn1477-7525
dc.identifier.urihttp://hdl.handle.net/10400.16/2131
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherBioMed Centralpt_PT
dc.relation.publisherversionhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC4962538/pdf/12955_2016_Article_513.pdfpt_PT
dc.subjectCAMPHORpt_PT
dc.subjectNottingham Health Profilept_PT
dc.subjectPortuguese adaptationpt_PT
dc.subjectPrecapillary pulmonary hypertensionpt_PT
dc.subjectPulmonary arterial hypertensionpt_PT
dc.subjectPulmonary hypertensionpt_PT
dc.subjectQuality of lifept_PT
dc.titlePortuguese validation of the Cambridge pulmonary hypertension outcome review (CAMPHOR) questionnairept_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.conferencePlaceEnglandpt_PT
oaire.citation.issue1pt_PT
oaire.citation.startPage110pt_PT
oaire.citation.titleHealth and Quality of Life Outcomespt_PT
oaire.citation.volume14pt_PT
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT

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