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Cross-cutting view of current challenges in paediatric solid organ and haematopoietic stem cell transplantation in Europe: the European Reference Network TransplantChild

2020Journal article Open access
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dc.contributor.authorJara, P.
dc.contributor.authorBaker, A.
dc.contributor.authorBaumann, U.
dc.contributor.authorBorobia, A. M.
dc.contributor.authorBranchereu, S.
dc.contributor.authorCandusso, M.
dc.contributor.authorCarcas, A. J.
dc.contributor.authorChardot, C.
dc.contributor.authorCobas, J.
dc.contributor.authorD’Antiga, L.
dc.contributor.authorFerreras, C.
dc.contributor.authorFitzpatrick, E.
dc.contributor.authorFrauca, E.
dc.contributor.authorHernández-Oliveros, F.
dc.contributor.authorKaliciński, P.
dc.contributor.authorLindemans, C.
dc.contributor.authorLopes, M. F.
dc.contributor.authorLópez-Granados, E.
dc.contributor.authorde Magnée, C.
dc.contributor.authorMota, C.
dc.contributor.authorMuñoz, J. M.
dc.contributor.authorOjeda, J. J.
dc.contributor.authorPérez-Martínez, A.
dc.contributor.authorPerilongo, G.
dc.contributor.authorRascon, J.
dc.contributor.authorSciveres, M.
dc.contributor.authorStone, R.
dc.contributor.authorTarutis, V.
dc.contributor.authorToporski, J.
dc.contributor.authorTorres, J. M.
dc.contributor.authorWennberg, L.
dc.date.accessioned2022-06-30T11:30:19Z
dc.date.available2022-06-30T11:30:19Z
dc.date.issued2020
dc.description.abstractThe low prevalence of European paediatric transplanted patients and scarcity of resources and expertise led to the need for a multidisciplinary network able to improve the quality of life of paediatric patients and families requiring a solid organ or haematopoietic stem cell transplantation. The European Reference Network (ERN) TransplantChild is one of the 24 ERNs established in a European legal framework to improve the care of patients with rare diseases. ERN TransplantChild is the only ERN focused on both solid organ and haematopoietic stem cell paediatric transplantation, based on the understanding of paediatric transplantation as a complex and highly specialised process where specific complications appear regardless the organ involved, thus linking the skills and knowledge of different organ disciplines. Gathering European centres of expertise in paediatric transplantation will give access to a correct and timely diagnosis, share expertise and knowledge and collect a critical mass of patients and data that increases the speed and value of clinical research outcomes. Therefore, the ERN TransplantChild aims for a paediatric Pan-European, Pan-transplant approach.pt_PT
dc.description.sponsorshipThe authors would like to thanks to the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency (CHAFEA). This work was supported by The European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency (CHAFEA) (SGA 770411 and SGA 811558).pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationJara P, Baker A, Baumann U, et al. Cross-cutting view of current challenges in paediatric solid organ and haematopoietic stem cell transplantation in Europe: the European Reference Network TransplantChild. Orphanet J Rare Dis. 2020;15(1):16. doi:10.1186/s13023-020-1293-0pt_PT
dc.identifier.doi10.1186/s13023-020-1293-0pt_PT
dc.identifier.issn1750-1172
dc.identifier.urihttp://hdl.handle.net/10400.16/2689
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherBioMed Centralpt_PT
dc.relation.publisherversionhttps://ojrd.biomedcentral.com/articles/10.1186/s13023-020-1293-0pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectHaematopoietic stem cell transplantationpt_PT
dc.subjectPaediatricpt_PT
dc.subjectPost-transplant managementpt_PT
dc.subjectQuality of lifept_PT
dc.subjectSolid organ transplantationpt_PT
dc.subjectSurgical procedurespt_PT
dc.subjectTransplantationpt_PT
dc.titleCross-cutting view of current challenges in paediatric solid organ and haematopoietic stem cell transplantation in Europe: the European Reference Network TransplantChildpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.conferencePlaceEnglandpt_PT
oaire.citation.issue1pt_PT
oaire.citation.startPage16pt_PT
oaire.citation.titleOrphanet Journal of Rare Diseasespt_PT
oaire.citation.volume15pt_PT
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT

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