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Abstract(s)
Registries have greatly contributed to knowledge about PAH epidemiology, risk factors, prognosis and treatment. Future registries face unique challenges but may benefit from integration of multiple data sources and capitalising on “Big Data” opportunities
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Citation
Weatherald J, Reis A, Sitbon O, Humbert M. Pulmonary arterial hypertension registries: past, present and into the future. Eur Respir Rev. 2019;28(154):190128. Published 2019 Dec 18. doi:10.1183/16000617.0128-2019