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Development and use of touch-screen computer-assisted self interviewing in Portuguese patients with chronic immune diseases: Evaluation of an electronic version of SF-36v2
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Advisor(s)
Abstract(s)
Abstract
Aim:The major purpose of this study was to evaluate
alternative automated methods of collecting data
on health related quality of life (HR-QoL). In order
to achieve this, we developed a study with the following
objectives: (1) to evaluated the feasibility of
electronic version in patients with different chronic
pathologies of the immune system using Short Form
36version2 (SF-36v2), (2) to evaluate the construct
validity of SF-36v2 using the electronic data capture,
and (3) to compare electronic version questionnaires
with paper questionnaires in terms of patients
´ acceptance, data quality, and reliability.
Methods:Out-patients with chronic immune diseases
(HIV infection, lupus, scleroderma, rheumatoid
arthritis, Behçet and Sjögren), were randomly
selected to completed electronic and paper SF-
36v2 (n=50) before consultation in Clinical Immunology
Unit, in Hospital Santo António-Centro
Hospitalar do Porto (CI-HGSA).
Results: There were very high correlations in SF-
36v2 responses (p< .001) between the paper and
electronic forms. Internal reliability coefficients
(Cronbach’s a) showed good internal consistency
for all reported responses in either, computer and
paper. There were no missing data in electronic version
or paper. About 84% of the patients prefer to use the computer version in future.
Conclusion: The electronic HR-QoL assessment is
technically possible and it can provide reliable and
valid clinically significant information which can
either be used in routine care appointments.
Description
Keywords
SF-36v2 Electronic Data Capture Quality of Life Immune Chronic Diseases
Citation
ACTA REUMATOL PORT. 2010;35:208-214
Publisher
Sociedade Portuguesa de Reumatologia